Allow quicker access to drug therapy for spinal muscular atrophy, Health Ministry urged

Published on 20 Nov 2018 12:07:37 AM

The Health Ministry has been urged to expedite access to a new drug therapy to treat those affected by spinal muscular atrophy (SMA), especially children, said the founder of NGO WeCareJourney Yap Sook Yee.

Yee said that at a press conference at the Parliament lobby on Monday, accompanied by Petaling Jaya MP Maria Chin Abdullah, who met with Deputy Health Minister Dr Lee Boon Chye to discuss the matter.

Yap also urged the government to consider and include SMA in the rare disease fund allocated under Budget 2019.